After the nurse left I decided I needed to go back to bed and then at 3:30 p.m. I was awakened by Bette and my mom. Before you get on them I gave orders to have mom bring Bette in and wake me up so all the blame goes to me. I think 3:30 p.m. is time to get up anyway. It is now almost 8:00 p.m. and I'm ready to go to bed again. I get frustrated being so tired, but that's part of the disease.
Today was one of the first times that I was craving real food. Everything sounded good and I could not get a small jar of infant baby food peaches down. At least I got a little taste. In the mornings I try coffee thick enough that the spoon stands up in the middle (I dare any of you to try it).
Since I feel like going to bed I better do it. It's a process that takes at least 40 minutes. Before I go I do want you to know that this is a horrible disease. My legs are giving out, and all of you know I don't give up easy, so please continue those prayers for all of our family.
1 comment:
Dawn, thanks for being so honest in expressing your feelings. It is so important for you to do that. We all need to be reminded of the daily struggles and frustrations you face. We all take so much for granted. When I am feeling frustration with my own health issues, I remind myself of the reality of your daily life and feel guilty for even complaining about my own. You are my inspiration my friend,and my heart hurts when I think of all you are going through. Praying for you.
Love, Pam
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